S. 350 · 117th Congress
Newborn Screening Saves Lives Reauthorization Act of 2021
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Never voted on. It didn't reach a floor vote before the 117th Congress ended, so it expired. A bill has to be introduced again to be considered in a new Congress.
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HassanSponsor14 cosponsors · 11 D, 3 R
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Wicker
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Stabenow
JS
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Shaheen
TB
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Baldwin
RW
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Wyden
SC
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Collins
LM
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Murkowski
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Van Hollen
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Klobuchar
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Reed
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Markey
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Kelly
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Brown
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Casey1 signed on when it was introduced; the rest joined later. Cosponsors who withdrew aren't shown.
This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.
What it does: CRS summary · Introduced in Senate · Feb 22, 2021
Newborn Screening Saves Lives Reauthorization Act of 2021
This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.
Among its changes, the bill reauthorizes and makes mandatory
- the Hunter Kelly Research Program at the National Institutes of Health, and
- national surveillance activities conducted by the Centers for Disease Control and Prevention.
The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.
Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov
About this bill and sources
Official title: Newborn Screening Saves Lives Reauthorization Act of 2021
Latest action (Feb 22, 2021): Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Policy area: Health · Origin: Senate · Introduced: Feb 22, 2021
Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)
No recorded floor vote found.