H.R. 5515 · 117th Congress
Protecting Americans’ Genomic Information Act of 2021
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Never voted on. It didn't reach a floor vote before the 117th Congress ended, so it expired. A bill has to be introduced again to be considered in a new Congress.
R
DunnSponsor4 cosponsors · 4 R
0 signed on when it was introduced; the rest joined later. Cosponsors who withdrew aren't shown.
This bill requires the Department of Health and Human Services (HHS) to address national security concerns when conducting or supporting biomedical research that involves human genomic sequencing and sensitive, identifiable information.
What it does: CRS summary · Introduced in House · Oct 8, 2021
Protecting Americans' Genomic Information Act of 2021
This bill requires the Department of Health and Human Services (HHS) to address national security concerns when conducting or supporting biomedical research that involves human genomic sequencing and sensitive, identifiable information.
Specifically, HHS must implement a risk framework to assess whether such research conducted by the National Institutes of Health or other HHS agencies and offices poses risks to national security and identify approaches to mitigate those risks, including through security controls and training for those that manage or have access to such research.
After the framework is developed, HHS must implement data access controls, ensure that data access committees include members with national security expertise, and update relevant data access and sharing policies.
The bill also requires HHS to brief Congress about these activities.
Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov
About this bill and sources
Official title: Protecting Americans’ Genomic Information Act of 2021
Latest action (Oct 11, 2021): Referred to the Subcommittee on Health.
Policy area: Health · Origin: House · Introduced: Oct 8, 2021
Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)
No recorded floor vote found.