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H.R. 482 · 117th Congress

Newborn Screening Saves Lives Reauthorization Act of 2021

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IntroducedPassed one chamberPassed both chambersBecame law (gold)Resolution agreed to (full, dark)Failed or vetoed (gray)

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Passed the House without a recorded vote, then expired. It passed by voice vote or unanimous consent, which don't record how each member voted, but didn't become law before the 117th Congress ended.

LRD Roybal-AllardSponsor
57 cosponsors · 43 D, 14 R
  1. House Introduced Jan 25, 2021
  2. House Passed Jun 23, 2021

This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.

What it does: CRS summary · Passed House · Jun 23, 2021

Newborn Screening Saves Lives Reauthorization Act of 2021

This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.

Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov

About this bill and sources

Official title: Newborn Screening Saves Lives Reauthorization Act of 2021

Latest action (Jun 24, 2021): Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Policy area: Health · Origin: House · Introduced: Jan 25, 2021

Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)

  1. House Introduced Jan 25, 2021
  2. House Passed Jun 23, 2021

No recorded floor vote found.