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H.R. 5115 · 115th Congress

RARE Act of 2018

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IntroducedPassed one chamberPassed both chambersBecame law (gold)Resolution agreed to (full, dark)Failed or vetoed (gray)

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Never voted on. It didn't reach a floor vote before the 115th Congress ended, so it expired. A bill has to be introduced again to be considered in a new Congress.

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

What it does: CRS summary · Introduced in House · Feb 27, 2018

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.

The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.

Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov

About this bill and sources

Official title: RARE Act of 2018

Also known as: Rare disease Advancement, Research, and Education Act of 2018

Latest action (Mar 2, 2018): Referred to the Subcommittee on Health.

Policy area: Health · Origin: House · Introduced: Feb 27, 2018

Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)

No recorded floor vote found.