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H.R. 594 · 113th Congress

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Law · 113-166 · Sep 26, 2014
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Became law without a recorded vote. It passed by voice vote or unanimous consent, which don't record how each member voted.

MBR BurgessSponsor
113 cosponsors · 68 D, 45 R
EED Engel RAD Andrews SBR Bachus SBD Bishop JBD Brownley KED Ellison GGD Green SGR Graves RHR Hall RHD Holt PKR King DKD Kilmer NLD Lowey CMD Maloney EMD Markey DMD Matsui WOD Owens CPD Peterson TPR Poe BRD Rush JRR Runyan PSR Sessions LSD Slaughter ASD Schwartz CSD Shea-Porter PWD Welch SJR Johnson RKD Kind DLD Loebsack BLR Luetkemeyer ASD Smith JTD Tierney RWR Wittman JGR Gerlach JPD Polis MCR Coffman DDD DeGette BGR Guthrie CGR Gardner DLD Lipinski MMD Michaud EPD Perlmutter BMD McCollum JRR Renacci SRR Rigell DYR Young JFR Forbes JHD Himes TGR Griffin BHD Higgins RHR Hudson POR Olson BOD O’Rourke CPD Pingree CRD Rangel JSD Schakowsky TBD Bishop YCD Clarke JCR Culberson CVD Van Hollen JHD Huffman SJD Jackson Lee BPR Posey MFR Fitzpatrick SCD Cohen PTD Tonko JMD Matheson CMD McCarthy JDR Duncan WED Enyart ZLD Lofgren SSR Stivers BLD Lee AKD Kirkpatrick SID Israel TCD Cárdenas RLD Larsen PMR Meehan GCD Connolly KCD Clark MDD Doyle WKD Keating LLR Lance ASD Sires SDR Daines SFR Fincher FWR Wolf ACD Carson FSR Sensenbrenner JKD Kennedy BPD Pascrell JMD Moran SLD Lynch JGD Garcia LFD Frankel RNR Nugent JWR Wilson JDD Delaney CSR Smith TDD Deutch NRD Rahall MTR Turner DBR Benishek CMR McMorris Rodgers MGR Grimm AHD Hastings RBR Bishop JMD McGovern JCR Chaffetz JMR Mica JMR Miller CSR Stewart TLR Latham

1 signed on when it was introduced; the rest joined later. Cosponsors who withdrew aren't shown.

  1. House Introduced Feb 8, 2013
  2. House Passed Jul 28, 2014
  3. Senate Passed Sep 18, 2014
  4. President To the President Sep 23, 2014
  5. President Signed Sep 26, 2014
  6. Law Sep 26, 2014

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).

What it does: CRS summary · Public Law · Sep 26, 2014

(This measure has not been amended since it was reported to the House on July 24, 2014. The summary of that version is repeated here.)

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).

Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers.

Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living.

Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy.

(Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner.

(Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.

Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov

About this bill and sources

Official title: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Also known as: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2013

Latest action (Sep 26, 2014): Became Public Law No: 113-166.

Policy area: Health · Origin: House · Introduced: Feb 8, 2013

Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)

  1. House Introduced Feb 8, 2013
  2. House Passed Jul 28, 2014
  3. Senate Passed Sep 18, 2014
  4. President To the President Sep 23, 2014
  5. President Signed Sep 26, 2014
  6. Law Sep 26, 2014

No recorded floor vote found.