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H.R. 2149 · 111th Congress

SMA Treatment Acceleration Act of 2009

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Never voted on. It didn't reach a floor vote before the 111th Congress ended, so it expired. A bill has to be introduced again to be considered in a new Congress.

PKD KennedySponsor
119 cosponsors · 85 D, 34 R
ECR Cantor CMD Maloney SDD Driehaus PTR Tiberi RWR Wittman JFR Fleming JSD Sestak FWR Wolf CYR Young CMR McMorris Rodgers TMR McCotter DWD Wu JWR Wilson JLD Langevin ETD Towns GHR Harper GMD Meeks EBD Blumenauer LCD Capps YCD Clarke JHD Himes MMD McIntyre BHD Higgins APR Putnam BTD Thompson BGR Goodlatte SHD Herseth Sandlin EMD Massa JHD Hall SID Israel HRR Rogers CDR Dent WJR Jones SRD Rothman ZLD Lofgren THD Holden SBR Bachus BFD Frank BSD Scott RAR Alexander JFR Forbes PKR King TPR Price DWD Wasserman Schultz JCD Cooper RBD Boucher TBD Baldwin JFR Fortenberry DCD Christensen KCD Castor GGD Green BRD Rush GKD Butterfield BBD Braley LWR Westmoreland BGD Gordon JMD Moran DKD Kildee TPR Poe CWD Wilson GND Nye CPD Peterson DBD Boren RKD Kind MMR McCaul IRR Ros-Lehtinen PSD Stark SKD Kagen RHR Hall MHD Heinrich LSD Slaughter CCD Carney HJD Johnson GND Napolitano BLD Lee AED Eshoo TBD Bishop TMR Murphy FUR Upton EMD Markey SBD Bishop JSD Speier JAD Altmire PTD Tonko JGD Garamendi JND Nadler ASD Sires GSD Sablan KED Ellison JPR Pitts JBD Barrow GTD Taylor EED Engel DLD Lipinski BLR Luetkemeyer MJD Jo Kilroy TCD Childers MKR Kirk DMD Maffei DMD Matsui MMD Michaud GCD Connolly BCD Chandler CFD Fattah BFD Filner CMD Melancon DPD Price TLR Latham JLD Lewis GWR Walden HCR Coble MDD Doyle JOD Olver MRD Ross NTD Tsongas CMD Murphy SMD Murphy ASD Schwartz LSD Sánchez

1 signed on when it was introduced; the rest joined later. Cosponsors who withdrew aren't shown.

SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites.

What it does: CRS summary · Introduced in House · Apr 28, 2009

SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field.

Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy.

Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages.

Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders.

Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.

Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov

About this bill and sources

Official title: SMA Treatment Acceleration Act of 2009

Latest action (Apr 29, 2009): Referred to the Subcommittee on Health.

Policy area: Health · Origin: House · Introduced: Apr 28, 2009

Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)

No recorded floor vote found.