H.R. 5265 · 110th Congress
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008
Law · 110-361 · Oct 8, 2008Key: what the circles and colors mean
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123 cosponsors · 86 D, 37 R
1 signed on when it was introduced; the rest joined later. Cosponsors who withdrew aren't shown.
- House Introduced Feb 7, 2008
- House Passed Sep 24, 2008 418–2
- Senate Passed Sep 26, 2008
- House Changes resolved Sep 27, 2008
- President To the President Sep 30, 2008
- President Signed Oct 8, 2008
- Law Oct 8, 2008
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.
What it does: CRS summary · Public Law · Oct 8, 2008
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.
Authorizes the Muscular Dystrophy Interagency Coordinating Committee to evaluate the potential need to enhance the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy.
Authorizes the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to report to the appropriate congressional committees on MD STARnet and data collection. Authorizes the Secretary to provide prospective health outcome data on the health and survival of people with muscular dystrophy.
Authorizes the Secretary, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; (2) cooperate with professional organizations and the patient community to develop, issue, and update care considerations for Duchenne-Baker muscular dystrophy and other forms of muscular dystrophy; and (3) widely disseminate such care considerations as broadly as possible, including through partnership opportunities with the muscular dystrophy patient community.
Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov
Votes to become law
About this bill and sources
Official title: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008
Latest action (Oct 8, 2008): Became Public Law No: 110-361.
Policy area: Health · Origin: House · Introduced: Feb 7, 2008
Official page on Congress.gov · Bill text (GovInfo) · Status record (XML) · Embed in your story
- House Introduced Feb 7, 2008
- House Passed Sep 24, 2008 418–2
- Senate Passed Sep 26, 2008
- House Changes resolved Sep 27, 2008
- President To the President Sep 30, 2008
- President Signed Oct 8, 2008
- Law Oct 8, 2008
Final vote · House · Sep 24, 2008
Passage (two-thirds required) — Passed. Vote details
Speaker of the House: Nancy Pelosi