H.R. 5397 · 109th Congress
Newborn Screening Saves Lives Act of 2006
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Never voted on. It didn't reach a floor vote before the 109th Congress ended, so it expired. A bill has to be introduced again to be considered in a new Congress.
D
Roybal-AllardSponsor7 cosponsors · 5 D, 2 R
1 signed on when it was introduced; the rest joined later. Cosponsors who withdrew aren't shown.
Newborn Screening Saves Lives Act of 2006 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in…
What it does: CRS summary · Introduced in House · May 16, 2006
Newborn Screening Saves Lives Act of 2006 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (2) develop educational programs about newborn screening for parents, families, and patient advocacy and support groups; and (3) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.
Requires the Advisory Committee on Heritable Disorders in Newborns and Children to: (1) recommend a uniform screening panel for newborn screening programs that includes the heritable disorders for which all newborns should be screened; and (2) develop a model decision-matrix for newborn screening program expansion.
Directs the Secretary to adopt or reject any new or pending recommendations by the Advisory Committee.
Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) provide for quality assurance for screening laboratories; (2) provide for population-based pilot testing for evaluating use of new screening tools on a mass scale; (3) collect, analyze, and make available data on certain heritable disorders; and (4) operate regional centers for the conduct of applied epidemiological research on the prevention of such disorders.
Written by the nonpartisan Congressional Research Service. All summary versions on Congress.gov
About this bill and sources
Official title: Newborn Screening Saves Lives Act of 2006
Latest action (Jun 5, 2006): Referred to the Subcommittee on Health.
Policy area: Health · Origin: House · Introduced: May 16, 2006
Official page on Congress.gov · Bill text (GovInfo) · Status record (XML)
No recorded floor vote found.